Debra Executive Director Brett Kopeland discussed epidermolyas Bullosa(EB), resources and services offered to patients and their families, and the significance of Rare Disease Day
Mount Sinai Hospital’s Icahn School of Medicine Associate Professor Mingia Dai, ph.d., and Associate Professor Sergei Yakushin discussed the history of research into Mal de Debarquement Syndrome(mdds), the severity of the illness patients suffer, and the treatment approach.